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Turning Heartbreak Into Hope: Navigating Special Needs Parenting w/ Marcia Nathai-Balkissoon PhD EP 131

August 27, 2024

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Episode Summary

What do you do when the world tells you to give up hope, but your heart refuses to listen? Join us as we share the incredible journey of Marcia Nathai-Balkissoon, a special needs parenting coach and strategy lecturer, who faced unimaginable challenges when her daughter, Emma, suffered a severe brain injury during open-heart surgery. Marcia and her husband, Sean, chose not to surrender to despair but to fight for their daughter’s future, navigating a medical system lacking in resources and expertise in their home country of Trinidad. Marcia opens up about the deep emotional and financial toll of being a caregiver, from the isolation and judgment from society and extended family to the staggering costs of medical care. She shares the anger and frustration of dealing with uninformed opinions and the heartbreak of inadequate medical equipment. Yet, through all the adversity, Marcia’s story is one of unwavering love and resilience, showcasing the critical role of parents in advocating for their children despite the lack of support systems.

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Show Contributors

Marcia Nathai-Balkissoon PhD & Anita Mattu

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